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The second theme is 'Looking for balance in daily life' with two main needs (1) maintain family functioning and (2) learn to deal with the child and CHD. The main parental needs are related to their interactions with healthcare professionals and healthcare systems, highlighted by a need for information and trust relationships to feel safe in their daily lives. Our results imply rethinking the nurse presence in ambulatory care, implementation of a family-centered care approach and addressing the diverse