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Child daily life and family difficulty scores suggest parents perceived both to be fairly "normal". While acknowledging effort invested in condition management, parents perceived high competence in managing their child's condition; 56% perceived personal growth resulting from their child's SBS journey. IRP management was associated with better child daily life (4.11, p=0.015), family difficulty (-4.85, p=0.048), and family management ability (4.28, p=0.014) scores. Many parents perceive child and family life with SBS to be fairly "normal", manage their chil
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